Living with HUS/TTPThis section is a place to share stories about Living with HUS/TTP. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download HUS My son was 18 months when he had HUS. He had vomiting and diahrea [diarrhea] for a few days.I took him to his pediatrition,who immediately hospitalized him.The quik diagnosis was nephritis and tests were done to confirm that.In the meantime he developed small black and blue marks all over his body.I called his pediatritian from the hospital room and told him about it.Within minutes the DR. was there and diagnosed him with HUS.He was air ambulanced to the university of Minnesota.He recieved many mnay blood transfusions and other treatment.His kidneys were in distress along with other organs.He had high blood pressure He teetered back and forth from near death.We were there for over a month.He is now 31 years old and full of spunk and energy.It was a tough road that year..but it all had a terrific .happy ending.The Doctors were all fantastic and I call them Jamie’s guardian angels.They pulled him through and I will forever be grateful.a few years later,my 12 year old nephew suffered from the same disease.The doctors at that time believed that our family was predisposed to HUS.So our whole family was warned to very careful to Ecoli exposure.The only residual effect,long term,I believe,was Hyperactivity.I noticed a change in personality after we got home.To this day,he has attention deficit and hyperactivity. |
|
Archives: The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer) |












