Living with HUS/TTPThis section is a place to share stories about Living with HUS/TTP. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My experience with HUS/TTP I was diagnosed with HUS/TTP 6 years ago. I had had a bad migraine with vomiting and diarrhea for 3 days. The only thing that made me go to the doctor was bloody stool. I had gone through 2 bouts with bleeding ulcers My doctor ran stat blood work but couldn’t hospitalize me because he didn’t have a diagnosis. He knew something was very wrong. He called me early the next evening and told me to meet him at the hospital immediately, that I was in kidney failure. That night I had my first of over 100 (yes 100) plasmapheresis treatments and my 1st of 4 dialysis treatments.I was in the hospital for 8 weeks and was out of work for over 6 months. I was on extremely high doses of steriods which almost destroyed the muscles in my legs and the ligaments in my feet. I can’t walk or stand for long periods of time to this date because of severe foot pain. I was fortunate enough to have excellent doctors who truly saved my life with their quick actions. July 2008
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