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Living with Kidney Stones

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Kidney Stones


by: Carol on Sun, Oct 07 2007

Hi, my name is Carol. I have been forming stones since the age of 19, now 45. I reside in NJ and was totally misdiagnosed by my same doctor of 23 years with MSK [medullary sponge kidney]!!!! I went to a doctor in Chicago who has greatly helped me! I no longer form stones and they have all stayed passable!!! PAIN is my life. I get maybe 2 good days a month if I am lucky!! However, at least the stones are passing! I would like to tell everyone that standing on your head when a stone is passing helps a great deal lots and lots of water! If your drinking enough water you will think you are a fish lol! NO LEMONADE until you know your stones composition, although I have NEVER heard of lemonade from any Doctor in my life!!! Keep your head up and search,search,search until you find out why you make these stones! For every stone there is a CAUSE!!!! Do not let yourself get depressed as there are so many others who are worse off than us stone sufferers!! Although it does not seem possible******it’s true!!! I average a stone about two to three times a month so I do know what you are all feeling!!!! The main thing is to find the cause and address it!! Please WATCH THE LIPOTRIPOSYS!!!! They have left so much dust in my medullary that it’s hard to believe my kidneys even function! This can never be fixed!!! If only I had mine surgically removed! PS your B.P. will spike during a stone attack!!! Good Luck Carol

Comment on this

Comments
  1. Tue, Mar 11 2008
    You said keep searching until you find the cause of the kidney stones what was your cause? I'm curious because my husband is going through a similar ...Read

October 2007

  • Uriflow - by KD - (Tue, Oct 30 2007)
    Hi, I was just wondering if any of you had ever heard of Uriflow? I am on my third battle with kidney stones I currently have a 4mm stone in my ureter (or at least it was a couple of weeks ago). [more..]
  • 3 is not better than 2 - by JAK - (Tue, Oct 30 2007)
    This is not so much a story as a caution. I was dignosed with my first kidney stone at the tender age of 16. They also found out I had 3 kidneys. Two smaller than average with seperate ureters to the bladder. [more..]
  • Simon Says - by D.R. - (Sun, Oct 28 2007)
    Over the weekend I awoke to some extreme pain on my right lower rib cage. Went to the e.r. and they found a 5mm stone. Very painful, after 3 days in the hospital it was removed with laser and a stint was also inserted, to be removed 5 days later. [more..]
  • stones again - by moldog - (Mon, Oct 22 2007)
    I just had EWSL for my left kidney in January. After the shock treatment, I had to be admitted because the fragments tried to pass at the same time causing a blockage. Then stents were put in to help pass the fragments. My urologist did not do any test on the fragments to see what type of stone I had. Now I have another stone in my right kidney. [more..]
  • Sick, sick sick - by Andrea - (Mon, Oct 15 2007)
    I found out I had a kidney stone and infection a few weeks ago after going to the emergency room for extreme pain. After reading the literature, I am confused. I had been having intermittent pain for months, had a hardness on that side of my lower abdominal for most of the last year that no one could diagnose, had been very sick for most of that time, [more..]
  • Kidney Stones - by Carol - (Sun, Oct 07 2007)
    Hi, my name is Carol. I have been forming stones since the age of 19, now 45. I reside in NJ and was totally misdiagnosed by my same doctor of 23 years with MSK [medullary sponge kidney]!!!! I went to a doctor in Chicago who has greatly helped me! I no longer form stones and they have all stayed passable!!! [more..]
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