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Living with Nephrotic Syndrome (NS)

This section is a place to share stories about Living with Nephrotic Syndrome (NS).

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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October 2007

  • minimal change nephrotic syndrome - by Bernadette - (Sun, Oct 28 2007)
    I have been diagnosed with Minimal Change Nephrotic Syndrome. I was on Steriod [Steroid] treatment for 3 months and am now steriod resistant. I am currently taking Cyclophosphamide and was told that I will be on this medication for 2 years. [more..]
  • Nephrotic Syndrome - 4 year old - by Bob - (Tue, Oct 09 2007)
    In July, 2007 my 4 year old son was diagnosed with Nephrotic Syndrome. We were on vacation and originally assumed the signs (extremely swollen eyes and legs) were simply allergies or maybe the result of a bug bite. We called our pediatrician and luckily for us she had seen one case of NS before and was able to essentially diagnose it over the phone. [more..]
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