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Living with Nephrotic Syndrome (NS)

This section is a place to share stories about Living with Nephrotic Syndrome (NS).

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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minimal change nephrotic syndrome
by: Bernadette on Sun, Oct 28 2007
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I have been diagnosed with Minimal Change Nephrotic Syndrome. I was on Steriod [Steroid] treatment for 3 months and am now steriod resistant. I am currently taking Cyclophosphamide and was told that I will be on this medication for 2 years. I am feeling so confused as am not really sure if I will be cured or will I be in remission? The side effects from the drugs have affected my life style and am not able to work. Can anyone tell me more about what I am to expect in the future? Some days I feel like just giving up and stopping the drugs so I can live again.
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October 2007

  • minimal change nephrotic syndrome - by Bernadette - (Sun, Oct 28 2007)
    I have been diagnosed with Minimal Change Nephrotic Syndrome. I was on Steriod [Steroid] treatment for 3 months and am now steriod resistant. I am currently taking Cyclophosphamide and was told that I will be on this medication for 2 years. [more..]
  • Nephrotic Syndrome - 4 year old - by Bob - (Tue, Oct 09 2007)
    In July, 2007 my 4 year old son was diagnosed with Nephrotic Syndrome. We were on vacation and originally assumed the signs (extremely swollen eyes and legs) were simply allergies or maybe the result of a bug bite. We called our pediatrician and luckily for us she had seen one case of NS before and was able to essentially diagnose it over the phone. [more..]

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