Living with Nephrotic Syndrome (NS)This section is a place to share stories about Living with Nephrotic Syndrome (NS). Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Minimal change Nephrotic Syndrome I was diagnosed with Minimal Change Nephrotic Syndrome in March 2007. I started treatment with Steroids and after four months became Steroid resistant. I then started Cyclophosphamide and when the dosage was increased, so did my protein levels with Acute Glomerulonephritis. I am now on Ciclosporin which seems to be working… I have had very bad side effects from the medication as it seems my body just can’t adjust to all this medication. I have been unable to work due to this fact. I have now been told that I will be on this medication for two years or more. With every new medication I take comes new nasty side effects. March 2008
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